Progressive Supranuclear Palsy

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Mndovrmnky

Mndovrmnky

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*I am not a doctor, do your own research before coming to any conclusions.
Always ask your doctor before taking anything.

My research led me to this.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3295368/
This is the website of the ppl who are studying this.
http://ethnomedicine.org
Serine in the brain.
http://www.brainpower.org/research/phosphatidyl-serine.html
http://onlinelibrary.wiley.com/doi/10.1111/j.1742-4658.2008.06515.x/full
Serine in the body.
http://www.serine.org/backgroundnon.htm
http://www.nutritional-supplements-health-guide.com/serine.html
Current trials
https://clinicaltrials.gov/ct2/show/NCT01733407
https://www.clinicaltrials.gov/ct2/show/NCT01835782?term=L-serine&rank=2
http://europepmc.org/articles/PMC3225995
The history of ALS/PDC in Guam.
http://www.alstdi.org/forum/?g=posts&t=49904

I would advise asking your doctors about a urine test to check for serine deficiency.

Good luck guys
Peace.
 
Mndovrmnky

Mndovrmnky

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59. BMAA is a potent chelator of zinc, so if increasing zinc concentrations absorbs more of the free (unbound) BMAA, which leaves less available for misincorporation into proteins.

Right on the last page, nearly missed it.
 
keiksweat

keiksweat

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Heavy metals,cant help thinking along the lines of aluminium,boron and what ever else is in them chemtrails.i think there's only gonna be more and more brain disease's from this to autism in kids...watch youtube (chemtrails)for those who ain't looked up in a while.sorry for the rant.i just feel its all linked and real important.your fathers in my prayers pal.
 
Mndovrmnky

Mndovrmnky

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The fact that big pharma isn't looking at this speaks volumes...
800million spent trying to find the cure to AD/PD etc etc...
These guys have spent 10million so far and it looks like they are half way there....

Big pharma doesn't like cheap treatments that cure ppl...
 
Mndovrmnky

Mndovrmnky

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Im looking at chelatiors of heavy metals now and found this
http://aminoacidstudies.org/l-cysteine/

This is used to chelate metals from the body but a lot more. It's also used in the process of manufacturing myelin.

Unfortunately we don't know if manipulating these things will make the diseases better or worse...
 
M

Matt O

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My name is Matt and my father is suffering from psp. I was wandering if anybody has any information on a doctor that possibly specializes in cannaboids and psp. Psp seems to be closely related to parkisons. I completely believe that this can help him but information and resources are scarce concerning psp and canniboids. I have heard of a doctor out of cali who has figured out dosing for other degenerative diseases . Does anybody have any more info on psp trials with canniboids and success. Your help is greatly appreciated.
 
Mndovrmnky

Mndovrmnky

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My name is Matt and my father is suffering from psp. I was wandering if anybody has any information on a doctor that possibly specializes in cannaboids and psp. Psp seems to be closely related to parkisons. I completely believe that this can help him but information and resources are scarce concerning psp and canniboids. I have heard of a doctor out of cali who has figured out dosing for other degenerative diseases . Does anybody have any more info on psp trials with canniboids and success. Your help is greatly appreciated.

Hi Matt, sorry about your dad. Mine was diagnosed about 8 months ago. He can still walk without falling over but he can't use his computer anymore. How long has yours been showing symptoms?

I give my dad Coq10 alongside glutathione/alpha lipoic acid/vitamin C. I have got my hands on some serine as well. I wouldn't know about dosage with weed, but during the day the big issue would be dizziness. My dad fell over on new years Eve and knocked himself out. Once I have cbd strains grown I will try him on it during that during the day but it may not be suitable.

It's a fucking horrible disease mate, I dread what's to come. My heart goes out to you and yours.

Peace
 
Mndovrmnky

Mndovrmnky

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I've been reading about colostrum healing possible leaks inthe digestive tracts. I wish I'd known of this sooner as one theory is that bacteria leak from the gut into the spinal fluid and work their way into the brain. I've nought immune tree colostrum 6.
There are lots of vids on YouTube.
Colostrum is apparently very good for auto immune disorders too.
 
Herb Forester

Herb Forester

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I'll second the suggestion to keep trying THC in addition to the CBD meds. The combination of both these cannabinoids, maybe along with others, can have a much more profound effect than CBD alone. I'm mostly ignorant about this condition, but I suspect much of the benefit would be as a homeostatic balancing tonic for the endocannabinoid system. It might also help the stiffness and tension. If it were me, I would want to thoroughly saturate myself with as much of both cannabinoids as possible for a few weeks/months to evaluate the effects.

Personally, at least at first, I would avoid the delta 11 hydroxy conversion from taking heat-activated orally consumed meds (juicing raw is different, no conversion). If he's resistant to vaporizing, something sublingual like candy or tinctures will give a milder head effect with quicker onset and easier titration. I would also consider taking Citicoline to lessen unwanted psychoactivity and help with memory issues (it's an OTC supplement often used with Alzheimer's treatment). Some patients taking high nightly doses of RSO-type heavy THC extracts say it helps with morning hangovers and general lethargy.
 
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gusley101

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My dad has not been diagnosed with PSP but my sister and I are convinced that's what he has. He has one eye that looks like it's trying to pop out of the socket. It's really gross to look at and the doctor gave him eye drops and ointment. I've looked into PSP gaze palsy and couldn't really find anything. I'm all about trying anything to help my dad but I'm in Ohio. He is in Arizona with my sister who won't try anything new. I've convinced her to try cbd oil as medical marijuana is legal in her state. Any suggestions for his eye?
 
Mndovrmnky

Mndovrmnky

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With Psp it affects the part of the brain that controls the movement of the eyes. It means he would struggle to look up and down. Eyeballs sticking out doesn't sound like anything I've heard from Psp ppl, sorry mate.
How's his balance? For us that's the main thing now. I was giving him cannabis oil to help him sleep but it resulted in him being a bit loopy the next day. He would behave as if he was going through a spell of progression. It tends to take two steps forward one step back.
 
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gusley101

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With Psp it affects the part of the brain that controls the movement of the eyes. It means he would struggle to look up and down. Eyeballs sticking out doesn't sound like anything I've heard from Psp ppl, sorry mate.
How's his balance? For us that's the main thing now. I was giving him cannabis oil to help him sleep but it resulted in him being a bit loopy the next day. He would behave as if he was going through a spell of progression. It tends to take two steps forward one step back.
With Psp it affects the part of the brain that controls the movement of the eyes. It means he would struggle to look up and down. Eyeballs sticking out doesn't sound like anything I've heard from Psp ppl, sorry mate.
How's his balance? For us that's the main thing now. I was giving him cannabis oil to help him sleep but it resulted in him being a bit loopy the next day. He would behave as if he was going through a spell of progression. It tends to take two steps forward one step back.
He lost his balance awhile ago. Pretty much wheelchair bound at this point. He's on
 
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gusley101

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He's lost his balance awhile ago and is pretty much wheelchair bound. He's on CBD oil for the stiffness. I wasn't sure if his eye was psp gaze palsy. There's so many things it could be I guess.
 
Mndovrmnky

Mndovrmnky

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Lots of news.
The phase one trial of l-serine has concluded and they are starting phase 2. All als patients. http://www.tandfonline.com/doi/full/10.1080/21678421.2016.1221971
Here is the patent for l-serine on neurological diseases.
http://www.google.com/patents/US20130156846

There's been a tau breakthrough at tau (tel aviv uni) using bovine phosphatydlserine.
http://m.jpost.com/Business-and-Inn...2OERCNDQ3RDJFMzY3MENDMDc3QjE5RjhBN0Y1NjRFREQ=

The billionaire with psp,who died in 2015, created the tau consortium and their work is starting to pay off.
 
chickenman

chickenman

Premium Member
Supporter
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bovine phosphatydlserine
Have lots of bovine supplementation in our supplements..
Check our Nurti plex formulas online whole food organic raw supplementations...
Been using for years..
 
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Benjaminburg

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Hello, my Dad has psp. It's a terminal degenerative brain disease with no cure. It will rob him of the ability to swallow, talk, see, and walk. The disease presents itself in different ways in different ppl but the outcome is always the same. He was diagnosed around 4 months ago after several years of him knowing something was wrong. He's still on his feet but is very wobbly and tends to bounce off the walls as he walks. The main worry just now is the choking.
For as long as I've been smoking dope he's been against it. But he has been open to trying what I've given him so far. I bought some cbd oil legally online. First I got cibdol but it's like 4% cbd. So then we got cbdbrothers oil which is 20%. He complains that it does nothing for him but we know better. I bought an extreme q vapouriser and he hit 3 full bags. It lifted his mood but made him dizzy and a lil anxious so that was a no. I then made some canna vape fluid for my kanger subox mini (nano). I tried to get him to use it but he doesn't like it. I finally got to the point where I had enough to make rs style oil, he tried this for the 2 nights leading up to New Year's Eve. On New Year's Eve he had a fall and hit his head, I shit myself thinking it may have been something to do with the oil. But he says he remembers choking and not being able to breathe so we're off the hook. Anyway they kept him in overnight and took an X-ray and a brain scan. They found a small bleed front left of the brain but they sent us home and said its nothing to worry about lolz. Anyway when he got home he asked for some oil and I've been spiking his soup with the cbd oil too. He seems to like my rs oil a lot and I'm very happy about it. A silver lining in the recent drama.
The disease works in a similar way to Alzheimer's and Parkinson's but presents differently. He gets stiff and sore during the day and he's always been a shit sleeper. Next step is some cbd strains to give him oil during the day without the dizzy effect. Like day nurse and night nurse cough syrup. :)

Anyway I thought I'd share, I'm relatively new to this carer malarkey and want to offer my support and hopefully get some support from some like minded folks.

Namasté
Hello! My father just received his advanced PSP diagnosis. I live in Colorado, he and my mother live in Missouri. I'd love to make a connection with you for mutual support and to swap ideas. My e-mail-- [email protected]
 
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